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Topic: List of rare diseases

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List of rare diseases starting with A

List of diseases starting with H

List of diseases starting with L

List of diseases starting with R

List of diseases starting with C

List of diseases starting with S

List of diseases starting with A

List of diseases starting with B

List of diseases starting with J

List of diseases starting with M

List of diseases starting with K

List of diseases starting with G

List of diseases starting with N

List of neurological disorders

Turner syndrome

	Disease
		Closely related though not infectious diseases in the strictest sense are parasitic diseases[?] caused by protozoa and worms.
		List of diseases for a list of common, notable, or infamous diseases.
		List of rare diseases for a huge list of 6000+ diseases, many very rare.
	www.ebroadcast.com.au /lookup/encyclopedia/di/Disease.html (315 words)

	Orphan Products: Hope for People With Rare Diseases
		Many rare diseases or conditions can be difficult to diagnose and manage because in their early stages, symptoms may be absent or masked, misunderstood, or confused with other diseases.
		Congress passed the "Rare Diseases Act of 2002," establishing a role for the ORD at the NIH in encouraging orphan disease research.
		Rare diseases affect so few people that information about them may be difficult to find, making the situation more traumatic and stressful.
	www.fda.gov /fdac/features/2003/603_orphan.html (2485 words)

	Rare Diseases
		Finding a recent guide specifically on the disease in question may be difficult as there are very few books entirely devoted to a specific rare disease, or that are tagged with a subject or title of "Rare Diseases 101".
		Genetic related conditions and diseases are spread over many potential call number ranges in genetics, pediatrics, human embryology, anatomical pathology, etc. Due to the explosion in the information within medical genetics, there will probably be some adjustments within the classifications schemes of the Library of Congress in the future.
		Established by the National Human Genome Research Institute and the Office of Rare Diseases, the GRDI Center employs experienced information specialists to answer questions from the general public, including patients and their families, health care professionals, and biomedical researchers.
	www.lib.uchicago.edu /e/su/med/rare.html (1250 words)

	List of rare diseases - Wikipedia, the free encyclopedia
		This list of rare diseases was originally taken from the NIH public domain resource at http://ord.aspensys.com/asp/diseases/diseases.asp
		Please note that this list is neither definitive nor complete.
		For a far larger list of diseases, including many other rare diseases, see List of diseases.
	en.wikipedia.org /wiki/List_of_rare_diseases (110 words)

	Special Emphasis Panel of the National Institutes of Health on the Coordination of Rare Diseases Research
		Individual investigators are valuable resources and the infrastructure that supports research, especially rare diseases research, must emphasize the value of their knowledge and expertise that may have been acquired over a lifetime career dedicated to researching a single rare disorder or a group of related rare diseases.
		For many patients with rare diseases, clinical trials serve as treatment options, especially when no other intervention is available, and treatment outcomes may be better during and after their participation in a clinical trial.
		ORD gives primary consideration to meetings on rare diseases or groups of diseases for which current research activity is lacking or lagging or for which research will be stimulated as a goal and an outcome of the meeting.
	www.malattiemetaboliche.it /congressi/rare_diseases_research.htm (12106 words)

	Diseases - Medical Encyclopedia
		This is a list of common, well-known or infamous diseases.
		This is not intended to be a list of rare diseases, nor is it a list of mental disorders.
		This is deliberate; where multiple names are in common use for the same disease, all of those names should link to the main article for the disease.
	www.nursingstudy.com /encyclopedia/list_of_diseases.html (120 words)

	Regional Centre for Rare Diseases
		The hallmark of rare diseases is that they require specialist and continuous assistance to such an extent that it requires major public investment.
		There are various “lists” of rare diseases that correspond to a reference definition or to a specific interest of the association or working group that produced it.
		The diseases are distributed amongst a high number of nosological groups, each of which includes a limited number of cases, usually 400 to 500 cases.
	www.pediatria.unipd.it /repser/e_dbase2generale.asp?attivita=177 (728 words)

	Rare Lung Diseases Consortium, Cincinnati Children's Hospital Medical Center
		The Rare Lung Diseases Consortium (RLDC) is a network of cooperating clinical centers and patient support organizations who are working with the National Institutes of Health (NIH) in a collaborative network whose novel structure is designed to accelerate clinical research and improve the delivery of medical care to individuals affected by rare lung diseases.
		According to the NIH Office of Rare Diseases, approximately 25 million Americans are affected by an estimated 6000 rare diseases, defined as a medical condition that affects fewer than 200,000 individuals in the United States.
		The Rare Lung Diseases Consortium facilitates clinical research in rare lung diseases by conducting clinical trials in individuals affected by rare lung diseases, training clinical investigators in rare lung diseases research and providing access to information on rare lung diseases to basic and clinical researchers, academic and practicing physicians, patients, and the lay public.
	www.cincinnatichildrens.org /research/project/rare-lung (677 words)

	Information Gathering (Site not responding. Last check: 2007-10-03)
		It has a list of multiple diseases, some that are not as common as others.
		What can be found on this web site, is not only a list of rare diseases, but a list of all the diseases that have been found through out the entire world.
		I know that it is a serious disease and that if someone is ever to have a seizure, that there are some special precautions that must be taken.
	darkwing.uoregon.edu /~nquirke/diseases/informationgathering.htm (220 words)

	NIH, Clinical Center - FY 2003 Bench-to-Bedside Awards
		An orphan or rare disease is generally considered to have a prevalence of less than 200,000 affected individuals in the United States.
		Certain diseases with more than 200,000 affected individuals are included but subpopulations of these conditions may be less than the prevalence standard for rare disease.
		A comprehensive list of rare diseases, updated regularly is available at http://ord.aspensys.com/diseases.asp.
	www.cc.nih.gov /ccc/btb/awards1.html (589 words)

	List of rare diseases starting with A: Definition and Links by Encyclopedian.com (Site not responding. Last check: 2007-10-03)
		List of rare diseases starting with A: Definition and Links by Encyclopedian.com
		This list of rare diseases was originally taken from the NIH public domain resource at http://ord.aspensys.com/diseases.asp.
		Post a link to definition / meaning of " List of rare diseases starting with A " on your site.
	www.encyclopedian.com /li/List-of-rare-diseases.html (129 words)

	Free Databases of Medical Information
		Following is a list of freeware that provides databases and electronic publications containing medical reference resources.
		An orphan or rare disease is generally considered to have a prevalence of less than 200,000 affected individuals in the USA.
		This list includes rare diseases and conditions for which information requests have been made to the Office of Rare Diseases, NIH.
	www.healthcarefreeware.com /med_data.htm (1520 words)

	Rare diseases - WrongDiagnosis.com
		Detailed information about the causes of Rare diseases including medication causes and drug interaction causes can be found in our causes pages.
		With a diagnosis of Rare diseases, it is also important to consider whether there is an underlying condition causing Rare diseases.
		Underlying medical conditions are other medical conditions that may possibly cause Rare diseases.
	www.wrongdiagnosis.com /r/rare_diseases/intro_printer.htm (187 words)

	Rare disease - Wikipedia, the free encyclopedia
		As a guide, low prevalence is taken as prevalence of less than 5 per 10,000 in the community [1].
		List from Health on the Net Foundation, available in several languages
		Siere: Spanish Information System on Rare Diseases (in Spanish)
	en.wikipedia.org /wiki/Rare_disease (451 words)

	WHO \| “Rare essentials”: drugs for rare diseases as essential medicines
		Since 1977, the WHO Model List of Essential Medicines (EML), published by WHO, has provided advice for Member States that struggle to decide which pharmaceutical technologies should be provided to patients within their public health systems.
		This complementary list of “rare essentials” could aid policy-makers and patients in, for example, emerging countries to improve access to these drugs and stimulate relevant policies.
		Furthermore, inconsistencies in the current EML with regard to medicines for rare diseases can be resolved.
	www.who.int /entity/bulletin/volumes/84/9/06-031518ab/en/index.html (261 words)

	Rare Diseases from Cancer
		Rare Diseases Terms An orphan or rare disease is generally considered to have a prevalence of fewer...
		This list includes rare diseases and conditions for which information requests have...
		Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
	www.clacs.co.uk /Rare-Diseases.html (232 words)

	NN/LM PSR Latitudes Article - NIH's New Rare Disease Information Center (Site not responding. Last check: 2007-10-03)
		A rare disease is defined as one that has a prevalence of less than 200,000 affected individuals in the USA.
		More information is available on the Center's web site at http://rarediseases.info.nih.gov including definitions, a list of rare diseases, patient support groups, patient travel and lodging, and research and clinical trials.
		MEDLINEplus also has information on Rare Diseases, including a link to the Office of Rare Diseases and to information on orphan drugs from the Food and Drug Administration.
	nnlm.gov /psr/lat/v11n2/rare_disease.html (169 words)

	Clinical Trials
		This site from the Office of Rare Diseases provides links to all clinical trial information sites at the National Institutes of Health, including their own Rare Diseases Clinical Research Data Base.
		Listings of Studies Currently Recruiting Patients include nationwide studies as well as studies conducted at the NIH Clinical Center in Bethesda.
		Trials are listed alphabetically and include statements of purpose, background, study description, patient eligibility, patient recruitment status, current status of the study, clinical and resource centers, contacts, and study results and publications, if available.
	www.parishnursing.umaryland.edu /clinicaltrials (1082 words)

	Genetic Disorder > geneticdiseasestudy.com (Site not responding. Last check: 2007-10-03)
		The previously reported Chlamydia sequence research was directed by Richard S. Stephens, Ph.D., of the University of California, Berkeley, in collaboration with researchers from the University of California at San Francisco, Stanford University and the National Institutes of Health.
		Two weeks after being surgically transplanted into either fetal or newborn rats with a congenital disease identical to the rare human myelin disorder Pelizaeus Merzbacher disease, the laboratory grown cells had developed into numerous myelin sheaths around nerve fibers previously without myelin.
		The absence of myelin is a manifestation of an array of genetic and acquired diseases, the best known being multiple sclerosis.
	www.geneticdiseasestudy.com (508 words)

	Diseases
		Information about treatments, symptoms, and causes of: appendicitis, celiac disease, cirrhosis, constipation, Crohn's disease, cyclic vomiting syndrome, diverticulosis and diverticulitis, gallstones, gas, heartburn, hemorrhoids, hepatitis, hiatal hernia, indigestion, irritable bowel syndrome, lactose intolerance, liver transplantation, Menetrier's disease, pancreatitis, peptic ulcer, porphyria, proctitis, traveler's diarrhea, ulcerative colitis, Whipple's disease, Wilson's disease, and Zollinger-Ellison syndrome.
		The Office of Rare Diseases was established in 1993.
		This presentation (one disease for each letter of the alphabet) provides basic information on environmental diseases.
	www.dekalb.k12.ga.us /~shamrock/pathfinders/diseases.html (475 words)

	NORD rare disease - Canadian MT Medical Transcription
		This listing of rare diseases is provided for spelling reference.
		Please Click HERE for a comma-delimited list of the rare diseases that you may add to your speller.
		Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy.
	www.canadianmt.com /rardisF.html (410 words)

	List of rare diseases starting with A : List of rare diseases (Site not responding. Last check: 2007-10-03)
		List of rare diseases starting with A : List of rare diseases
		This list of rare diseases was originally taken from theNIH public domain resource at http://ord.
		He had been lying in a sort of stupor, but he suddenly sat dressed; she wore her dancing slippers; she had only to put on her creation, the last touches require more time than the whole groundwork teach me what is due to my father, I have known my father this.
	www.termsdefined.net /li/list-of-rare-diseases.html (316 words)

	Medicare Patient Access to Drugs for Rare Diseases Act of 2003
		This Act may be cited as the `Medicare Patient Access to Drugs for Rare Diseases Act of 2003'.
		(1) Rare diseases and disorders are those which affect small patient populations, defined as fewer than 200,000 individuals in the United States.
		Taken together, 25,000,000 Americans suffer from one of the 6,000 rare diseases and disorders.
	www.theorator.com /bills108/hr2700.html (884 words)

	Skin Disease (Site not responding. Last check: 2007-10-03)
		According to The Bureau of Labor Statistics Survey of Occupational Injuries and Illness released in October 2006, skin disease remains the most prevalent occupational illness.
		Imported from Turkey, the fish are used in some Middle Eastern countries as a natural way to treat skin disease and...
		The rare blood disorder can lead to painful attacks of edema, or swelling, of the face, airway, abdomen, and extremities.
	skindiseasesdanger.info /skin_disease/list_of_rare_skin_diseases (436 words)

	Disease Reference - Health Illnesses and Disorders Information
		Note: The information posted or linked to from this site should not be used for diagnosis or treatment of a disease or a health disorder.
		Contents of this site are meant for educational and informational purposes only and should not, in any case, be substituted for a medical consultation.
		For the latest information on diseases, visit the Center for Disease Control and Prevention website.
	www.disease-reference.com (293 words)

	FAQ: Genetics Resources
		Genetic and Rare Disease Information Center The National Human Genome Research Institute NHGRI) and the Office of Rare Diseases (ORD) have experts who will answer questions from the public.
		Genes and Disease is an online book that describes the genetic basis for diseases and conditions.
		Specific Genetic Disorders is a list, created by NHGRI, of diseases with a genetic component.
	www.nlm.nih.gov /services/genetics_resources.html (241 words)

	Rare Diseases Ring (Site not responding. Last check: 2007-10-03)
		The Rare Diseases WebRing is dedicated to health education, information and support.
		Through the use of the WebRing we will be able to share the information and experiences we have when dealing with rare diseases.
		Many diseases can be traced back to side effects from exposure to certain other elements or chemicals.
	s.webring.com /hub?ring=rarering (713 words)

	Angel Investor News.com
		There are substantial financial and intellectual property incentives, tax credits, grants for clinical development, and “ombudsman-type” assistance to encourage development of drugs for rare diseases and medical conditions.
		Generally, a disease or medical condition is considered “rare” if there are less than 200,000 patients in the United States affected.
		There is no list of rare diseases and conditions.
	www.angel-investor-news.com /ART_orphan.htm (909 words)

	INASP Links & Resources/INASP HEALTH LINKS: General Health Resources/Disease Classifications and Listings (Site not responding. Last check: 2007-10-03)
		Developed by the World Health Organization, the ICD is the classification used to code and classify mortality data from death certificates.
		MHI is a subject index to illnesses and diseases.
		This is an extensive list of hypertext links to disease resources on the Internet.
	www.inasp.info /health/links/disindex.html (292 words)

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