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Topic: List of rare diseases starting with H

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In the News (Tue 20 Aug 19)

  List of diseases starting with Y - Wikipedia, the free encyclopedia
(Redirected from List of rare diseases starting with Y)
A list of diseases in the English wikipedia.
en.wikipedia.org /wiki/List_of_rare_diseases_starting_with_Y   (86 words)

 List of rare diseases starting with A : List of rare diseases   (Site not responding. Last check: 2007-11-01)
This list of rare diseases was originally taken from theNIH public domain resource at http://ord.
This list of rare diseases was originally taken from the NIH public domain resource at http://ord.aspensys.com/diseases.asp.
He had been lying in a sort of stupor, but he suddenly sat dressed; she wore her dancing slippers; she had only to put on her creation, the last touches require more time than the whole groundwork teach me what is due to my father, I have known my father this.
www.termsdefined.net /li/list-of-rare-diseases.html   (316 words)

 RLDC - Learn More
AAT is the primary blocker of neutrophil elastase, a powerfully destructive protease released from neutrophils during lung inflammation that destroys lung tissue and causes emphysema.
In the lungs, cystic fibrosis associated with the presence of thick mucus, bacterial colonization of the airways and repeated bouts of acute exacerbations of the lung disease.
A similar disease called hyaline membrane disease also occur in premature infants born before the lungs have matured to the point where they are able to produce adequate amounts of surfactant to prevent lung collapse.
rarediseasesnetwork.epi.usf.edu /rldc/learnmore/glossary.htm   (4478 words)

 NORD - National Organization for Rare Disorders, Inc.
NORD was represented at a recent conference in South Korea hosted by the Genetic and Rare Diseases Center of the Korea National Institute of Health.
It was made possible by the Rare Disease Act of 2002, for which NORD and its member organizations were instrumental in providing advocacy.
JAMA, Journal of the American Medical Association, article (June 28, 2006): This article describes the NIH Rare Diseases Clinical Network and notes that NORD was instrumental in providing advocacy for increased funding for rare-disease research.
rarediseases.org   (1309 words)

 Report on the National Institutes of Health Workshop on Autologous Stem Cell Transplantation for Pediatric Rheumatic ...   (Site not responding. Last check: 2007-11-01)
Despite significant advances in the management of patients with rheumatic diseases over the last decade, current treatments remain inadequate for a large number of children, either because of poor disease control, excessive toxicity of the treatment, or a combination of the two.
Early data emerging from stem cell therapy in adult autoimmune disease indicate that the preparative regimen significantly halts inflammation (as macrophages and neutrophils are destroyed).
A partial list of primary immunodeficiencies associated with autoimmune complications, and arthritis in particular, are shown in Table 3.
rarediseases.info.nih.gov /html/workshops/fy2000/sctlist1.html   (14377 words)

 Orphanet Journal of Rare Diseases | Full text | Systemic lupus erythematosus
SLE is a relapsing and remitting disease, and treatment aims are threefold: managing acute periods of potentially life-threatening ill health, minimizing the risk of flares during periods of relative stability, and controlling the less life-threatening, but often incapacitating day to day symptoms.
It must be remembered, however, that normal investigations, and lack of evidence of disease activity in another system, do not rule out the diagnosis of NPSLE – in a recent study of MRI in patients with NPSLE, 34% had normal brain scans [12].
In one cohort [22]), renal lupus accounted for the biggest number of deaths in those with less than 5 years of disease, whereas vascular disease was the most important factor in the group who died later in the disease course.
www.ojrd.com /content/1/1/6   (3360 words)

 [No title]
We are pleased to offer the following list of books useful as reference and as inspiration for the plant collector and hobbyist.
Listings of plant sources, societies, and organizations have been updated for this edition.
An invaluable starting point to clarify the of numerous cultivars in all our collections; this book is well worth adding to your library.
www.succulentplants.com /books.html   (9418 words)

 EUROPA - Public Health - Funded projects - Rare diseases - 2002
To improve and disseminate expert knowledge on medical issues in an emerging group of patients: adult patients with rare diseases.
The issues are common to many of these diseases, allowing discussion and evaluation on diagnosis and treatment transcending the limits of a single disease.
The topics are pregnancy, bone disease, ophthalmologic disease, neurological complications, new treatment strategies, and extended neonatal screening programmes.
ec.europa.eu /health/ph_projects/2002/rare_diseases/raredis_2002_07_en.htm   (216 words)

 William Dailey Rare Books, Ltd. - Philosophy
Cheneau, a well-known eccentric, was a publisher and follower of Swedenborg and also a member of the Swedenborgian ecclesiastical organization known as the Church of the New Jerusalem.
James Ross (1837-1892), member of the Royal College of Physicians, published a number of ingenious works the nervous system, Darwin’s theory of pangenesis, a famous classification of nervous diseases that was the first large textbook of its kind.
Our copy is one of the rare variant issues with the Latin preface of the philologist Jerome Gemusaeus (1505 - 1543) instead of that of doctor and botanist Joachim II Camerius (1534 - 1598).
www.daileyrarebooks.com /0902philosophy.htm   (9451 words)

 [No title]
Should a list owner decide that a particular individual should not be subscribed or remain subscribed, that is their prerogative.
The list is moderated and explicitly pro-hunting -- debating moral issues of using dogs for hunting or hunting in general are not permitted.
The purpose of the list will be to provide an international platform for the discussion of all aspects of the working gundog including breeding, training,breeds, hunting and general welfare.
www.faqs.org /ftp/faqs/dogs-faq/email-lists   (10916 words)

 ONE NIH OFFICE STATES FMD NOT RARE - by Susan Gould - www.ezboard.com
The response is from the Genetic and Rare
According to the ORD, FMD is not a rare disease in of itself.
When asked if being a rare disease had less sponsorship appeal to potential research sponsors the answer is no. As long as you can provide the numbers supporting the community affected with FMD that is all you need for sponsorship.
p210.ezboard.com /ffibromusculardysplasiafrm32.showMessage?topicID=20.topic   (1558 words)

 Vaccinia (Smallpox) Vaccine
Fatal complications caused by vaccinia vaccination are rare, with approximately 1 death/million primary vaccinations and 0.25 deaths/million revaccinations (54).
Nonhospital isolation of confirmed or suspected smallpox patients should be of a sufficient degree to prevent the spread of disease to nonimmune persons during the time the patient is considered potentially infectious (i.e., from the onset of symptoms until all scabs have separated).
If a vaccinated or unvaccinated contact experiences a fever >101° F (38° C) during the 17-day period after his or her last exposure to a smallpox patient, the contact should be isolated immediately to prevent contact with nonvaccinated or nonimmune persons until smallpox can be ruled out by clinical or laboratory examination.
www.cdc.gov /mmwr/preview/mmwrhtml/rr5010a1.htm   (8925 words)

 Rare Breeds News Archives
See Betty Rowe's Arapawa Wildlife Sanctuary for her account of saving the rare breeds of Arapawa Island, and Arapawa Goats in the USA for the story of how this rare breed got to America.
Rare Breeds Society member and United States Kiko goat breeder, Mike Wade, tells us that there are now more than 1,600 » Kiko goats (a rare breed that originated in New Zealand) registered with the » International Kiko Goat Association in North America.
Breeders of the rare Arapawa Island Pig have expressed concern for the future of this breed – there is a real need for more breeders if it is to survive.
www.rarebreeds.co.nz /newsarchive.html   (4654 words)

 Hemeralopia, Familial   (Site not responding. Last check: 2007-11-01)
List of diseases starting with H - Enpsychlopedia
List of rare diseases starting with H - ArtPolitic Encyclopedia of...
We hope that this disease directory has been useful in finding information regarding your illness or disease.
www.medicality.org.uk /diseases/hemeralopia,-familial.php   (109 words)

 Report on Clinical Center Staff Conference on (ALPS) - ORD - Office of Rare Diseases   (Site not responding. Last check: 2007-11-01)
Patients at most risk for poor outcomes include those with dysphagia and ulcerative skin disease at onset, severe vasculopathy on initial muscle biopsy and relative "undertreatment" with high-dose corticosteroids (25-27).
The inclusion criteria for this trial were failure to respond to high dose MTX intramuscularly (1mg/kg/wk), failure to respond to at least 2 DMARD’s, anti-TNF treatment (for patients enrolled after October 1999), steroid dependency (>0.3mg/kg/day needed to control symptoms), unacceptable toxicity to DMARD’s or steroids.
Other disease or organ dysfunction that would limit survival to less than 30 days.
rarediseases.info.nih.gov /html/workshops/workshops/sctlist1.html   (14373 words)

 [No title]
Jennifer, Yes, with respect to rare fruits, living in Point Loma is both a blessing and a curse.
Here is a list of varieties of the plants that you want to grow that seem to do well here on the coast.
Rare Fruit News Online can only function if readers write - maybe to ask questions, to report on news in their yards, or to comment on letters others have written.
www.rarefruit.com /RFN2004AllYr.txt   (19110 words)

 [No title]
My name is Gerardo Garc’a Ramis, I've been collecting rare fruit since 1986 and I live on a one acre property in the foothills of the El Yunque mountain range in Puerto Rico.
Unfortunately, bananas are rapidly being destroyed by a fungal disease called fl Sigatoka that is devastating crops in Africa and Latin America.
Insect pathologist Roberto Pereira recently discovered a disease he named yellow head disease, thought to be caused by a protozoan from the genus Mattesia.
www.rarefruit.com /RFN2003AllYr.txt   (18073 words)

 Genetic/Rare Conditions National /International Groups
Siblings of Children with Genetic / Rare Conditions
Conditions and Diseases: Congenital Syndromes, Congenital Malformations, and Inborn Errors of Metabolism as well as Genetic and Metabolic Conditions
, private organization, listings of air ambulance services worldwide.
www.kumc.edu /gec/support/grouporg.html   (1046 words)

 Barry Cassidy Rare Books - Gardening
Fifty year anniversary catalog of the company, consisting of a history of the business and listings of the kind of plants the nursery sells: Coniferous evergreens; Evergreen Shrubs; Deciduous trees; Deciduous shurbs and vines; Hardy plants.
Annual report to the President of the United States on the status of agriculture in the U. Includes crop production, cattle diseases, plant diseases, swine bacteria, insect infestations, remedies, etc. Insects.
19 color plates (fruit diseases, insects, rose rust, fruits); 37 fl and white illustrations (tree, plant and fruit diseases); diagrams of corn and wheat production; map of the mid-western states under the Division of Forestry.
www.barrycassidyrarebooks.com /cassidy/bookmain.asp?searchtype=bookcat&subject=Gardening   (2966 words)

 Hipo Syndrome   (Site not responding. Last check: 2007-11-01)
Home Page > Diseases Directory > hipo syndrome
ORPHANET® : Base de données sur les maladies rares et les...
Dowston syndrome Hinson-Pepys disease Hip dislocation Hip dysplasia Beukes type Hip Dysplasia Hip luxation Hip subluxation Hipo syndrome...
www.medicality.org.uk /diseases/hipo-syndrome.php   (137 words)

 Multiple Sclerosis - MS (Multiple Sclerosis) - information page with HONselect   (Site not responding. Last check: 2007-11-01)
HONcode - Starting Interferon Beta-1a Inititally May Slow Multiple Sclerosis Progression
Broader term(s): - Autoimmune Diseases of the Nervous System - Nervous System Diseases
Broader term(s): - Demyelinating Autoimmune Diseases, CNS - Autoimmune Diseases of the Nervous System - Nervous System Diseases
www.hon.ch /HONselect/Selection/C10.114.375.500.html   (636 words)

 BioMed Central | journals A-Z
Journal of Autoimmune Diseases all content Open Access
Lipids in Health and Disease all content Open Access
Orphanet Journal of Rare Diseases all content Open Access
www.biomedcentral.com /browse/journals   (678 words)

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