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Topic: Muscular Dystrophy Association


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MDA

In the News (Fri 10 Jul 09)

  
  Encyclopedia: Muscular Dystrophy Association   (Site not responding. Last check: 2007-09-20)
Muscular Dystrophy Association (MDA) is a U.S. organization founded in 1950 which combats muscular dystrophy and diseases of the nervous system and muscular system in general by funding research, providing medical and community services, and educating health professionals and the general public.
The muscular dystrophies are a group of genetic and hereditary muscle diseases; characterized by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue.
Oculopharyngeal dystrophy (OPD), or oculopharyngeal muscular dystrophy, is a form of muscular dystrophy characterized in some stages by deformation of the eyelid, speech impediment, and difficulty swallowing due to dystrophia of the pharynx.
www.nationmaster.com /encyclopedia/Muscular-Dystrophy-Association   (1042 words)

  
 Muscular Dystrophy Association - Wikipedia, the free encyclopedia
MDA is most famous for the nationwide telethon it holds on Labor Day each year.
Begun in 1966, it is hosted by Jerry Lewis, who has supported MDA since its inception.
MDA made the unprecedented decision to pledge $1 million of the money raised to disaster relief, making the donation specifically to the Salvation Army.
en.wikipedia.org /wiki/Muscular_Dystrophy_Association   (394 words)

  
 Muscular Dystrophy Association
The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering 40 neuromuscular diseases that affect more than a million Americans.
MDA scientists are in the forefront of gene therapy research and have uncovered the genetic defects responsible for several forms of muscular dystrophy, Charcot-Marie-Tooth disease, a form of amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease), childhood spinal muscular atrophy, and several other neuromuscular conditions.
MDA was created in 1950 by a group of adults with muscular dystrophy, parents of children with muscular dystrophy, and a physician-scientist studying the disorder.
www.ideafinder.com /guest/madlist/amd-mda.htm   (233 words)

  
 EP Associations - The Muscular Dystrophy Association   (Site not responding. Last check: 2007-09-20)
MDA is a voluntary health agency working to defeat more than 40 neuromuscular diseases through worldwide research, services and professional and public health education.
MDA is currently funding research on several promising fronts, including the use of donated stem cells, gene therapy and drug therapy.
MDA sponsors publications for affected families and for the general public about neuromuscular disorders, convenes international scientific meetings, and holds conferences of MDA clinic directors and their associates.
www.eparent.com /resources/associations/mda.htm   (1294 words)

  
 MedlinePlus Medical Encyclopedia: Duchenne muscular dystrophy
Duchenne muscular dystrophy is an inherited disorder characterized by rapidly progressive muscle weakness which starts in the legs and pelvis and later affects the whole body.
Duchenne muscular dystrophy is a rapidly progressive form of muscular dystrophy.
Duchenne muscular dystrophy is inherited in an X-linked recessive pattern.
www.nlm.nih.gov /medlineplus/ency/article/000705.htm   (885 words)

  
 Muscular Dystrophy
Muscular dystrophy (MD) is a genetic disorder that weakens the muscles that help the body move.
Congenital muscular dystrophy (CMD) is the term for all types of MD that show signs in babies and young children, although the MD isn't always diagnosed right away.
The life expectancy (in other words, how long a person may live) for many of these forms of muscular dystrophy depends on the degree to which a person's muscles are weakened as well as how much the heart and lungs are affected.
kidshealth.org /teen/diseases_conditions/bones/muscular_dystrophy.html   (825 words)

  
 DMD DUCHENNE MUSCULAR DYSTROPHY   (Site not responding. Last check: 2007-09-20)
The muscular dystrophies are a group of muscle diseases which have three features in common: they are hereditary; they are progressive; and each causes a characteristic, selective pattern of weakness.
Limb Girdle Muscular Dystrophy (LGMD), which is most often of autosomal recessive inheritance, may be difficult or impossible to distinguish from BMD which is X-linked recessive.
Often the probability that a woman is a carrier is so low that the risk of muscular dystrophy to her baby is much lower than the average risk of serious birth defect or genetic disease.
www.mda.org.au /specific/mdadmd.html   (2382 words)

  
 Muscular Dystrophy School Search
Muscular dystrophy is an inherited disorder characterized by skeletal muscle fiber degeneration which leads to gradually declining muscle strength and bulk.   There are a variety of types of muscular dystrophy.
Duchenne Muscular Dystrophy occurs in around one in 3,500 male births and is the most severe form of muscular dystrophy.  Life expectancy for one with Duchenne Muscular Dystrophy is early to mid-twenties. (4)  Toddlers with Duchenne Muscular Dystrophy are usually first noted to fall frequently, have difficulty climbing stairs, and calf muscles may look enlarged.
Muscle weakness and a waddling gait are seen with Becker Muscular Dystrophy.  Some men with Becker Muscular Dystrophy will lose their ability to walk, but not necessarily in every case.
www.youthprogramcentral.com /schools/muscular.html   (312 words)

  
 DECA - Muscular Dystrophy Association   (Site not responding. Last check: 2007-09-20)
The Association is on the threshold of delivering treatments and cures for more than 40 muscle-wasting disorders that affect more than a million Americans, including nine forms of muscular dystrophy, Lou Gehrig's disease, spinal muscular atrophy, Charcot-Marie-Tooth disease and other myopathies.
MDA serves adults and children with neuromuscular diseases at 240 hospital-affiliated clinics nationwide, and offers an unparalleled program of medical and support services.
In 2004, MDA sponsored a 90 week-long camp sessions in 42 states and Puerto Rico for more than 4,100 children and their one-on-one volunteer counselors.
www.deca.org /nab/mda.htm   (164 words)

  
 Muscular Dystrophy Association
The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
Kevin P. Campbell, a longtime Muscular Dystrophy Association research grantee at the University of Iowa in Iowa City was recently elected to the National Academy of Sciences (NAS).
A European study supported by the MDA shows that genetic deficiencies of a growth factor protein increase the risk of developing the deadly neuromuscular disease amyotrophic lateral sclerosis, and that the same protein might be used to treat it.
www.charitywire.com /charity99   (985 words)

  
 Welcome - Muscular Dystrophy Association   (Site not responding. Last check: 2007-09-20)
For example: Duchenne Muscular Dystrophy is usually inherited from the mother by the son.
In Spinal Muscular Atrophy neither parent is affected but both must have the faulty gene if it is to be passed on to their children.
Muscular Dystrophy Association researchers are at the forefront of international research; they already know the genetic faults responsible for several conditions and are investigating possible treatments.
www.mdawa.asn.au /pages/q_and_a.shtml   (567 words)

  
 Charity.com: Muscular Dystrophy Association - August 2003   (Site not responding. Last check: 2007-09-20)
It was founded in 1950 by adults with muscular dystrophy and parents of children with the disease.
MDA funds some 400 teams of researchers around the world who are uncovering the causes of neuromuscular diseases.
MDA services include medical examinations at a network of 230 hospital-affiliated MDA clinics, support groups, MDA summer camps for youngsters, and assistance with purchase of wheelchairs, leg braces and communication devices.
www.charity.com /commda.shtml   (415 words)

  
 Duchennes Muscular Dystrophy - A Great Resource of Information   (Site not responding. Last check: 2007-09-20)
It is high in actively contracting muscles and low in cases of muscular disease such as Duchennes's muscular dystrophy.
Jordan has Duchennes Muscular Dystrophy, the fastest progressing form of MD. Although it affects the lower body first, causing most children to be wheelchair bound by their early teens, it continues...
Dystrophy - dystrohy (corneal dystrophy fuchs, fuchs dystrophy, duchennes mu...
www.totallymuscle.com /duchennesmusculardystrophy_2   (1512 words)

  
 muscular dystrophy physical therapy | New resources for muscular dystrophy physical therapy   (Site not responding. Last check: 2007-09-20)
Muscular dystrophy (MD) refers to a group of genetic...
Becker Muscular Dystrophy, BMD,Becker Muscular Dystrophy, BMD,Benign pseudoh...
muscular dystrophy, cancer, congenital defects of all kinds, mental and physical...
www.1st-physical-therapy.info /musculardystrophyphysicaltherapy   (1070 words)

  
 Muscular Dystrophy Association   (Site not responding. Last check: 2007-09-20)
The Muscular Dystrophy Association is a voluntary health agency — a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
MDA’s ALS Division leads the world in research and services to defeat ALS.
The Rices are co-chairpersons of MDA’s ALS Division.
www.mdausa.org   (334 words)

  
 Muscular Dystrophy Italian Association   (Site not responding. Last check: 2007-09-20)
Today the Association is present throughout the national territory with 9 regional Committees and 71 provincial Sections where members work on a voluntary basis in accordance with their professional nature in the fields where patients require assistance.
Because of this view, the association preferred and backed its widespread propagation thoughout Italy by means of its various sections, some of which operate in a difficult reality, such as in the central-southern regions, where cases of individuals being cut off from the rest of society can still be found.
The existence of UILDM has also been launched in Europe: in 1970, together with its sister associations, it founded the EAMDA - European Alliance of Muscular Dystrophy Associations - which allows active collaboration between the member countries as far as research and social policies are concerned.
www.uildm.org /eng   (617 words)

  
 Muscular Dystrophy Information Page: National Institute of Neurological Disorders and Stroke (NINDS)
The muscular dystrophies (MD) are a group of genetic diseases characterized by progressive weakness and degeneration of the skeletal muscles that control movement.
There are many forms of muscular dystrophy, some noticeable at birth (congenital muscular dystrophy), others in adolescence (Becker MD), but the 3 most common types are Duchenne, facioscapulohumeral, and myotonic.
The NINDS is a member of the Muscular Dystrophy Coordinating Committee (MDCC).
www.ninds.nih.gov /disorders/md/md.htm   (594 words)

  
 Muscular Dystrophy Association - Go Milpitas!
Fill the Boots are the result of a partnership between MDA and the International Association of Fire Fighters.
MDA is a voluntary health agency determined to conquer 40 neuromuscular diseases that affect hundreds of thousands of Americans.
Most important, MDA is making landmark achievements in research for cures and treatments for these devastating neuromuscular diseases.
www.gomilpitas.com /mda.htm   (442 words)

  
 CBBB Wise Giving Alliance
MDA oversees a network of 230 clinics that supply both initial diagnoses and follow-up treatment for neuromuscular diseases.
In 2003, MDA reports it funded 400 scientific investigations in the United States and abroad.
Through its educational efforts, MDA informs the public and medical community about neuromuscular disorders through its monthly "Quest" magazine, bi-monthly "ALS Newsletter," brochures, workshops and its annual "Jerry Lewis MDA Labor Day Telethon." Some ($1,458,000 or 1%) of MDA's professional and public education programs are conducted in conjunction with fund raising appeals.
www.give.org /reports/care_dyn.asp?278   (606 words)

  
 Muscular Dystrophy Association
The Muscular Dystrophy Association is a voluntary national health agency - a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
MDA is striving to defeat over 40 neuromuscular diseases such as Duchenne, Spinal Muscular Atrophy, and ALS (or Lou Gehrig's disease).
MDA works in your community to combat neuromuscular diseases through 1) basic and applied scientific investigation, 2) local comprehensive programs of medical services and clinical care, and 3)widespread professional and public health education.
www.volunteersolutions.org /org/6151124.html   (304 words)

  
 MedlinePlus: Muscular Dystrophy
New Muscular Dystrophy Cooperative Research Centers Announced (11/04/2005, National Institute of Arthritis and Musculoskeletal and Skin Diseases)
MDA Research Advances Rapidly (08/01/2005, Muscular Dystrophy Association)
The primary NIH organization for research on Muscular Dystrophy is the National Institute of Arthritis and Musculoskeletal and Skin Diseases
www.nlm.nih.gov /medlineplus/musculardystrophy.html   (443 words)

  
 Muscular Dystrophy / Family Village Library
MDA fights forty neuromuscular diseases through a worldwide research effort, a nationwide program of medical services, and professional and public health education.
MDA's Medical Advisory and Scientific Advisory committees review projects that will increase knowledge in the neuromuscular field and may lead to treatments or cures for muscular dystrophy and related disorders.
MDA publishes and distributes a wide variety of print and audiovisual materials to promote public understanding and provide information to parents and caregivers of MDA patients.
www.familyvillage.wisc.edu /lib_md.htm   (315 words)

  
 Muscular Dystrophy Association of New Zealand Inc
You will also find news about MDA national and branch events and activities, photos from events and information of interest and relevance to people with a neuromuscular condition, their familites, their carers, teachers, employers, supporters, medical professionals and other interested people.
The Muscular Dystrophy Association relies on donations given to us by donors who have been contacted by telephone.
On November 19 and 20, 2005, the MDA Council is holding a strategic review meeting.
www.mda.org.nz   (283 words)

  
 Muscular Dystrophy Association | MDA Carnival   (Site not responding. Last check: 2007-09-20)
MDA helps adults and kids who have diseases that make their muscles get weaker and weaker.
People with muscular dystrophy have trouble using their arms and legs, and sometimes talking, swallowing and breathing.
Anyone who likes to have fun, is creative and wants to help fight muscular dystrophy can have an MDA Carnival.
www.mdacarnival.org   (369 words)

  
 IAFF: Across the IAFF   (Site not responding. Last check: 2007-09-20)
The total is almost two and a half times what fire fighters had collected in the 2004 boot drive.
November 2, 2005 - Richmond, VA Local 995 is a major player in the annual Muscular Dystrophy Summer Camp held in Wakefield, Virginia every June.
Local 682 members were led by Local President Nick Golden and MDA Coordinator Monty Cockerham.
www.iaff.org /across/mda.html   (270 words)

  
 CPSP's Muscular Dystrophy Association Page   (Site not responding. Last check: 2007-09-20)
The Muscular Dystrophy Association offers opportunities for university students to gain practical experience while developing public relations, communications, marketing, advertising, education and organizational skills.
Responsibilities for MDA interns include recruitment of new sponsors for fundraising projects, implementation of fundraising programs in local companies, distribution of program materials and development and implementation of a public awareness program.
Volunteers will help MDA fundraising staff write and distribute radio/television public service announcements and press releases, help prepare presentations for local organizations, and help coordinate various fundraising events such as the MDA Jerry Lewis Labor Day Telethon, Lock Ups, mobile programs and Shamrocks Against Dystrophy.
www.albany.edu /cpsp/sites/m/m8.html   (126 words)

  
 HAWAII - Muscular Dystrophy Association Volunteer Opportunities   (Site not responding. Last check: 2007-09-20)
Thank you for your interest in the Muscular Dystrophy Association.
In addition to the events that we hold, we have volunteer opportunities in our MDA office.
Please contact the MDA Honolulu office for further information on how you can contribute to our wonderfully rewarding cause.
www.angelfire.com /alt2/mdavolunteer   (140 words)

  
 Muscular Dystrophy Association
The NALC was the first national sponsor of the Muscular Dystrophy Association and letter carriers are among MDA's top fund-raisers, collecting more than $20 million in the past 15 years alone to finance research and provide care and services for children and adults with muscular dystrophies.
NALC's local branches are honored annually during the Jerry Lewis MDA Telethon over the Labor Day weekend for their efforts.
NALC Honor Roll - NALC Branches that raised funds for MDA during the 2004 campaign
www.nalc.org /commun/mda   (162 words)

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