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Topic: Texas Neurofibromatosis Foundation

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	Neurofibromatosis - WrongDiagnosis.com - WrongDiagnosis.com (Site not responding. Last check: 2007-11-03)
		Neurofibromatosis type I (was known as Von Recklinghausen disease after Friedrich Daniel von Recklinghausen).
		Neurofibromatosis type 1 is due to mutation on chromosome 17q, the gene product being Neurofibromin (a GTPase activating enzyme).
		Neurofibromatosis type 2 is due to mutation on chromosome 22q, the gene product is Merlin, a cytoskeletal protein.
	www.wrongdiagnosis.com /wikipedia/Neurofibromatosis.html (654 words)

	Neurofibromatosis - Wikipedia, the free encyclopedia
		Neurofibromatosis type 1 is due to mutation on chromosome 17q11.2, the gene product being Neurofibromin (a GTPase activating enzyme).
		Neurofibromatosis is considered a member of the neurocutaneous syndromes (phakomatoses).
		Joseph Merrick, the Elephant Man, was once considered to have been afflicted with either elephantiasis or neurofibromatosis type I. However, it is now generally believed that Merrick suffered from the very rare Proteus syndrome.
	en.wikipedia.org /wiki/Neurofibromatosis (707 words)

	Trek for Charity in Kilimanjaro - Absolute Adventure Travel
		The Texas Neurofibromatosis Foundation is a 501 (C) (3) a non-profit organization with the following mission statement:
		The Texas Neurofibromatosis Foundation was formed in 1980 to battle Neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
		The money we raise for the Texas Neurofibromatosis Foundation will be used for medical research the benefits of which will improve lives not just of for patients with NF but for many thousands of others around the world.
	www.absoluteadventuretravel.com /charity-trek_neuro.htm (740 words)

	M. D. Anderson provides Father's Day tips for getting your man to participate in cancer screening (Site not responding. Last check: 2007-11-03)
		Neurofibromatosis is a genetic disorder that affects approximately one in 3,500 persons.
		Neurofibromatosis involves the uncontrolled growth of tumors along the nervous system which can result in disfigurement, deformity, deafness, blindness, brain tumors, cancer and death.
		Neurofibromatosis is often mistaken for the "elephant man's" syndrome, another genetic disorder known as Proteus Syndrome.
	www3.mdanderson.org /news/20000802.html (346 words)

	News Story: Full Text
		Neurofibromatosis is a disease that causes uncontrolled tumor growth along nerve pathways, which can result in blindness, deafness, disfigurement, brain tumors and even death.
		The Texas NF Foundation provides educational materials for patients and their families, physician's referrals, a summer camp to help patients and their families deal with the disease.
		In addition, the foundation supports six NF clinics in Texas, offers professional education through the Carolyn Farb Endowed Lecture Series and funds vital research that keeps hope alive for patients and their families.
	www.virtualtrials.com /news3.cfm?item=157&showtext=y (405 words)

	eMedicine - Neurofibromatosis : Article by Jennifer R Kam, MD (Site not responding. Last check: 2007-11-03)
		Although most individuals who develop neurofibromatosis are not born with café au lait macules, these skin lesions develop during the first 3 years of life, prompting parents to seek medical attention for their child.
		Neurofibromatosis is often diagnosed because of unusual pigmentary patterns.
		The prognosis of neurofibromatosis is varied, as is the nature of the disease.
	emedicine.com /derm/topic287.htm (2481 words)

	Rare Pediatric Disease Database (Site not responding. Last check: 2007-11-03)
		Neurofibromatosis type 1 (NF1) is a genetic disorder wherein tumors called neurofibromas grow on the nerves underneath the surface of the skin, thus causing abnormalities noticeable on the skin.
		The effects of the disease vary depending on the extent of the tumor growth, however, most children with NF1 live normal lives.
		Neurofibromatosis 1 (NF 1) is usually diagnosed in young children and the diagnostic criteria requires that the child must have at least 2 of the following:
	www.madisonsfoundation.org /content/3/1/display.asp?did=275 (658 words)

	Molecular 'brake' for neurofibromatosis 1 (Site not responding. Last check: 2007-11-03)
		This brake is a protein that appears to stop the cascade of molecular events that leads to the activation of a cancer-producing gene, or oncogene, that causes the tumors.
		The study was supported by the National Institutes of Health, the Children's Tumor Foundation, and the Department of Defense's Neurofibromatosis Foundation.
		Neurofibromatosis 1 occurs in about one in 3,500 newborn children and is characterized by multiple growths, or neurofibromas, on or under the skin, usually along nerve fibers.
	www.nfteam.com /id195.htm (614 words)

	Lists - Leadership & Community Involvement - SMU
		The mission of the Texas Discovery Gardens is to have a positive impact on the future of Texas by teaching people effective ways to restore, conserve, and preserve nature in the urban environment through the use of native and adapted plants that illustrate the interrelationship of Butterflies, Bugs, and Botany.
		Texas Scottish Rite Hospital for Children is one of the nation's leading pediatric centers for the treatment of orthopedic, neurological and learning disorders.
		The Texas Youth Commission (TYC)is the juvenile correction agency for the State of Texas and is responsible for serving delinquent youth ages 10 through 21, who are committed to the states custody.
	www.smu.edu /lci/Lists/AgencyList2.asp (4915 words)

	Komen Houston Race For The Cure® (Site not responding. Last check: 2007-11-03)
		Her independent Texas spirit and philanthropic drive have led her to literally raise the bar in the world of fundraising.
		She is the Chairman of the Board for UNICEF as well as a board member of Northwood University, the High School for the Performing and Visual Arts, the Huffington Center on Aging, the Texas Innocence Network, and the Children of Nicaragua Rotarian Project and Rotarian International Efforts.
		In 1992, the Texas Neurofibromatosis Foundation, through the University of Texas M.D. Anderson Cancer Center, established the Carolyn Farb Endowed Lecture in Neurofibromatosis as a way to share research, expertise and experience and raise public awareness of the disease.
	www.strasburger.com /calendar/komen/houston2005.asp (443 words)

	Rare Pediatric Disease Database (Site not responding. Last check: 2007-11-03)
		Neurofibromatosis type 2 (NF2) is a genetic disorder that is characterized by the presence of tumors that grow on both sides of the 8th cranial nerve which is responsible for hearing.
		This condition was once called “bilateral acoustic neurofibromatosis or central neurofibromatosis.” The 8th cranial nerve is named the vestibulocochlear nerve for its two parts, the vestibular and cochlear parts of the inner ear where sound is transmitted to the brain for hearing.
		It is now known that the tumors of NF2 most commonly occur on the vestibular membrane, and are called vestibular schwannomas.
	www.madisonsfoundation.org /content/3/1/display.asp?did=276 (619 words)

	Neurofibromatosis
		Neurofibromatosis is a genetic disorder featuring multiple neurofibromas on the skin, various other skin phenomena, and a predisposition to particular tumors (both benign and malignant).
		Apart from the neurofibromas, which can be sparse or numerous, the presence of 6 or more cafe-au-lait spots may suggest the presence of this syndrome.
		Joseph Merrick, the Elephant Man, was once considered to have been afflicted with either elephantiasis or neurofibromatosis type I. However, it is now widely believed that Merrick suffered from the very rare Proteus syndrome.
	www.mrsci.com /Dermatology/Neurofibromatosis.php (637 words)

	Ablation of NF1 function in neurons induces abnormal development of cerebral cortex and reactive gliosis in the brain ...
		Neurofibromatosis type 1 (NF1) is a prevalent genetic disorder that affects growth properties of neural-crest-derived cell
		Rosman, N.P. and Pearce, J. The brain in multiple neurofibromatosis (von Recklinghausen's disease): A suggested neuropathological basis for the associated mental defect.
		Upadhyaya, M., Shaw, D.J., and Harper, P.S. Molecular basis of neurofibromatosis type 1 (NF1): Mutation analysis and polymorphisms in the NF1 gene.
	www.genesdev.org /cgi/content/full/15/7/859 (7591 words)

	Quality of Life (Site not responding. Last check: 2007-11-03)
		Mission is to reduce death and disablility from cardiovascular diseases and stroke.
		Typing assistant is needed at this Rice area office of an agency that places a key role in the process of arranging life saving organ donations.
		Numerous opportunities are available, such as staffing a reception desk, serving as patient escorts, wheeling a magazine cart around the facility, or simply visiting patients in their rooms.
	www.houstonchronicle.com /content/community/volunteer/quality.html (5779 words)

	tz_talk_radio
		In February 2005, Sandy and her listeners will be climbing Mount Kilimanjaro in Tanzania, promoting adventure travel and raising proceeds for research on a cure for Neurofibromatosis.
		When David Breashears filmed his IMAX movie Kilimanjaro &endash; To the Roof of Africa, he used the same guides." Added Farebrother, "The trek will be a good physical challenge, an opportunity to raise funds for a most worthy cause and a lot of fun.
		Neurofibromatosis (NF) is not a rare disorder, it is the most common neurological disorder caused by a single gene.
	www.africa-ata.org /tz_talk_radio.htm (1291 words)

	Volunteer Solutions (Site not responding. Last check: 2007-11-03)
		The Texas Neurofibromatosis Foundation is committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding, and other resources for its treatment, prevention and eventual cure.
		The Foundation organizes support gatherings across the state of Texas, social outings, the annual NF Family Camp, and the annual NF Symposium.
		Educating patients, families, physicians, teachers, and the general public about neurofibromatosis is part of the foundation's public education program.
	www.volunteersolutions.org /ut/org/14840932.html (262 words)

	Texas Monthly: the National Magazine of Texas
		As weird as the 2006 governor’s race undeniably is, the goals of all four major candidates are remarkably mundane.
		For twenty years, the Southwestern Writers Collection, on the campus of Texas State University, in San Marcos, has gathered up manuscripts, personal papers, photos, and other mementos from various icons and at least one outlaw.
		Copyright © 1973-2006 Texas Monthly, Inc. An Emmis Communications company.
	www.texasmonthly.com /index.php (572 words)

	Esmerel's Web Accessibility Resources
		Neurofibromatosis Inc "Is an organization made up of independent state and regional chapters, providing support and services to NF families.
		Texas Neurofibromatosis Foundation "We are committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure."
		Velo-Cardio Facial Syndrome Educational Foundation "Is an international non-profit, self help organization dedicated to providing support and information to individuals who are affected by Velo-Cardio Facial Syndrome, their families, physicians and other practictioners."
	www.esmerel.org /misc/genetics.htm (375 words)

	Services
		The Friends of Children with Neurofibromatosis is an auxiliary group of The Texas
		Neurofibromatosis Foundation committed to serving the needs of the Foundation, our patients
		We need volunteers to help the 25th Anniversary events of the Texas NF Foundation.
	dallasnf.org (238 words)

	Media Release: Commitment to the Cure 2005
		"Strasburger is proud to be able to help promote awareness of the important mission of the Komen Foundation and to honor survivor Carolyn Farb," stated Betsy Kamin, partner-in-charge of Strasburger's Houston office.
		Andrew Halpern, vice president and general counsel for the Komen Foundation, adds "Strasburger's contribution to the Komen Foundation is exemplary and goes well beyond the normal bounds of good corporate citizenship.
		We also commend Carolyn Farb for her tireless dedication to the nonprofit community throughout the state of Texas and for her work in inspiring others to follow her well-blazed path.
	www.strasburger.com /media/release/05/1024a.htm (665 words)

	MedlinePlus: Neurofibromatosis
		Neurofibromatosis (National Institute of Neurological Disorders and Stroke)
		Neurofibromatosis FAQs on Clinical Trials and Studies (Children's Tumor Foundation)
		The primary NIH organization for research on Neurofibromatosis is the National Institute of Neurological Disorders and Stroke
	www.nlm.nih.gov /medlineplus/neurofibromatosis.html (142 words)

	Support
		The purpose of this area is to links that maybe be of use and interest.
		We are currently trying to set up a support group for families with children with brain tumors.
		The Epilepsy Foundation of Central & South Texas
	pediatric-neurosurgery.com /Support.asp (201 words)

	Miscellaneous Collin County, Texas Obituaries
		She is survived by her children, David Westrick and wife, Annette of Denton, Texas, Ed Westrick of Princeton, Virginia Westrick of Princeton, and Kathy Wilson and husband, Mike of Princeton; grandchildren, Jonathan King, Adam King, Nicholas Westrick and Hunter Wilson; and mother, Arvilla Brosius of Princeton.
		She is survived by her sisters, Lucile Johnson and husband Frank of Richardson and Peggy Ledenham and husband Cecil of San Antonio; niece Myra McFadyen and husband Tom of Frankston, Texas; and nephews Jim Gentle and wife Connie of Orlando, Fla., MW “Bud” Gentle and wife Allison of San Antonio and Jerry Ledenham of Richardson.
		Ester Lue Armstrong, born April 2, 1911, in Hunt County, Texas, went to be with the Lord on Dec. 7, 2002, in McKinney at the age of 91 years.
	www.obitcentral.com /obitsearch/obits/tx/tx-collin15.htm (4581 words)

	WB33.com \| KDAF \| WB33 Kids Fund
		The WB33 Kids fund, a fund of the Robert R. McCormick Tribune Foundation, was established in 1998 as a way to stimulate charitable contributions in the Dallas/Fort Worth community.
		Money raised through the fundraising efforts of the Fund is matched by the McCormick Tribune Foundation and given back to our community in the form of grants.
		The McCormick Tribune Foundation's primary mission is to improve our social and economic environment, encourage a free and responsible discussion of issues affection our nation, enhance the effectiveness of American education and stimulate responsible citizenship.
	wb33.trb.com /community/kdaf-community-kidsfund,0,7765711.htmlstory?coll=kdaf-comm-nav (301 words)

	ALMATEXAS
		The town of Alma was established in 1871, when the Houston and Texas Central Railroad was built through Ellis County.
		Wagner was diagnosed with neurofibromatosis when she was 3 years old.
		Memorials may be made to the John D. Wagner Scholarship Fund, c/o Texas Neurofibromatosis Foundation, 16475 Dallas Parkway, Suite 780, Addison, TX 75001.
	lordoftheflies.org /img/alma.htm (538 words)

	Mays Business Online
		During his 30 years in the homebuilding and mortgage industries, Speer has participated in the construction and/or financing of more than $5 billion in real estate.
		Graduating from Texas AandM with a BBA in accounting in 1971 and MBA in 1973, Speer served as an auditor at PricewaterhouseCoopers.
		Programs ranged from college scholarships with the Texas Colonial Foundation for Youth (which he co-founded) to underwriting Mays Business School's Freshman Business Initiative, a learning community for first-year students.
	maysbusiness.tamu.edu /2004/11/oaa-speer.html (335 words)

	ZoomInfo Web Summary: Karen Rodman (Site not responding. Last check: 2007-11-03)
		KAREN BAXTER RODMAN Karen is currently the executive director of Dallas Social Venture Partners, a group of business and technology professionals using the venture capital model to invest in area non-profits that focus on issues related to children and education.
		She also serves as Vice President of the board of directors for the Dallas Chapter of the National Committee on Planned Giving and the DFW Advisory Board of the Forum for Women Entrepreneurs.
		She was the executive director for the Redman Foundation for ten years and is currently the associate director for The Dallas Foundation.
	www.zoominfo.com /directory/Rodman_Karen_18788325.htm (697 words)

	Memorial Obituaries Beethe, Byron (Site not responding. Last check: 2007-11-03)
		Throughout most of his life, Byron has shown great perseverance in dealing with neurofibromatosis which he was diagnosed with at age 3.
		He is survived by his parents, Cindy Beethe of Longview and Bernie Beethe of Ville Plat, La.; his loving sister, Bethany Beethe; paternal grandfather, Alonzo Beethe; maternal grandparents, Wanda and Fran Asbury; and numerous aunts, uncles, cousins, and friends.
		Memorial contributions may be made in honor of Byron to: Texas Neurofibromatosis Foundation at 16475 Dallas Parkway, Suite 780, Addison, Texas 75001.
	obit.memorialobituaries.com /obit_display.cgi?id=82196&clientid=raderfh&listing=Current (312 words)

	Neurofibromatosis, Inc.
		Neurofibromatosis, Inc. encourages and promotes local support services to NF families.
		We frequently make referrals to local support groups which do not have a formal relationship with NF, Inc. Some of those groups are listed below.
		If you are aware of an NF organization or support group which should be listed here, please let us know.
	www.nfinc.org /friends.shtml (56 words)

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